They need a ventilator to stay alive. Getting one can be a nightmare

NPR
Derek McManus has ALS, but his insurer initially refused to provide an advanced medical ventilator. Each machine can cost insurers more than $10,000. An independent appeals reviewer ordered the insurer to provide one.

Few nursing homes can care for people who need help breathing with a ventilator because of ALS and other conditions. Insurers often deny payment for the best at-home machines, and innovative solutions are endangered by Medicaid cuts.

(Image credit: Lauren Petracca for KFF Health News)

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